In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Andrea Pett-Joseph Brandon ...
Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...
For the first time, doctors were able to treat a child who had a life-threatening rare genetic skin disease through a transplant of skin grown using genetically modified stem cells. For the first time ...
ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT. This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On ...
Dr Su Lwin from King's College London and Guy's and St Thomas' NHS Foundation Trust has been awarded funding from LifeArc and DEBRA UK to lead a ...
This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On September 21, the Epidermolysis Bullosa Medical Research Foundation hosted its 7th annual event in Malibu, Calif., ...
The disease, of which there are five major types and at least 31 subtypes, is incurable. People with the condition have a defect in the protein-forming genes necessary for skin regeneration. About 500 ...
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