Strong winds and heavy rain did not stop more than 50 teams and over 600 registered participants from raising $137,500 to ...

ARLINGTON, Va., Nov. 3, 2025 /PRNewswire/ -- A new survey of more than 1,000 people living with ALS and caregivers reveals that more than half of participants are experiencing isolation, with 36% ...

It’s a schtick we repeat whenever he needs to reorder something he buys in bulk, like gauze pads, deodorant, or gloves. He always feigns disappointment when we run out of something. “So irritating,” ...

ARLINGTON, Va., April 7, 2026 /PRNewswire/ -- The ALS Association today applauded the reintroduction of the Accelerating Access to Critical Therapies for ALS (ACT for ALS) Reauthorization Act (H.R.

There`s an entire generation that has grown up listening to Sapna Rana’s voice on the radio. Remember the tagline “It’s hot” that aired on the country’s very first private radio station? If that ...

Receiving a diagnosis of ALS is emotionally devastating and riding the usually fatal disease to the grave is an experience that tries men’s souls. But as I once heard Rabbi Harold Kushner (When Bad ...

Otsuka Pharmaceutical Development & Commercialization, Inc. today announced the initiation of a global early access program (EAP) for ulefnersen, an investigational RNA-targeted medicine, for eligible ...

Grey’s Anatomy and Euphoria actor Eric Dane announced his diagnosis in April 2025. “I have been diagnosed with ALS,” he told People. “I am grateful to have my loving family by my side as we navigate ...

There are some famous faces among the 30,000 people in the United States who are living with ALS. In February 2026. Eric Dane lost his battle with the disease, less than one year after he publicly ...

The MarketWatch News Department was not involved in the creation of this content. Treatments Are Within Reach: Reintroduced ACT for ALS Bill Would Help Get Them to People Living with ALS Faster ...

Suggested Citation: "Front Matter." National Academies of Sciences, Engineering, and Medicine. 2024. Living with ALS. Washington, DC: The National Academies Press. doi: 10.17226/27739. The National ...