Adam Pearson used his neurofibromatosis struggles to succeed in acting and advocacy, inspiring others to accept differences ...
The US Food and Drug Administration has approved mirdametinib for the treatment of neurofibromatosis type 1 (NF1) in adults ...
Adult and pediatric patients with neurofibromatosis type 1 who have symptomatic plexiform neurofibromas that are not amenable ...
Von Recklinghausen disease (VRD) is also called neurofibromatosis type 1 (NF1). It is a genetic disorder in which the growth of nervous tissue is altered, producing tumors related to the nerve sheath.
A Cuban woman staged a solitary protest outside the "Juan Manuel Márquez" Pediatric Hospital in Havana, demanding medical care for 10-year-old Damir ...
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Mum's fear for son with rare and unpredictable conditionhad never heard of Neurofibromatosis type 1 (NF1) until her son Tom was diagnosed just before his second birthday. The now-10-year-old has blurred vision in his right eye which is enlarged due to ...
The FDA on Tuesday signed off on SpringWorks Therapeutics’ mirdametinib—now to carry the brand name Gomekli—for the treatment ...
The Cuban government is attempting to use the case of young Damir Ortiz Ramírez as a showcase for its healthcare system. The ...
This is a phase II open label study that will evaluate children ≥ 1 year of age and adults with neurofibromatosis type 1 (NF1) and plexiform neurofibromas treated with the MEK inhibitor, binimetinib.
The kinase inhibitor is now approved for adults and children aged ≥ 2 years with neurofibromatosis type 1 who have ...
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