Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

Discover how butterfly rashes, purple spots, and other skin changes can reveal lupus, blood disorders, and serious diseases ...

Courtesy of ellianas_journey/TikTok. Epidermolysis Bullosa is a rare genetic disorder that usually impacts infants or young children, causing fragile skin that blisters easily, according to the ...

Jonah was born with a rare genetic skin disorder -- epidermolysis bullosa, or EB -- on Feb. 27 at Forsyth Medical Center. People with EB lack proteins in their skin.

Your brain and skin are interconnected—and when a disorder affects both, treatment must involve a multidisciplinary approach.

Nails that aren’t smooth or aren’t one color can be a sign of many diseases -- or of none. Only your doctor can tell for sure. Look for the usual suspects before you assume a serious problem.

April 30, 2025 – The FDA has approved a new cell-based gene therapy for people with a rare genetic skin disorder known as recessive dystrophic epidermolysis bullosa (RDEB) after clinical studies ...

X-linked ichthyosis, a rare skin condition caused by a genetic deletion, is associated with increased risks of neurodevelopmental, mood, and cardiac disorders, including arrhythmias such as atrial ...

April 29 (Reuters) - The U.S. Food and Drug Administration approved Abeona Therapeutics' (ABEO.O), opens new tab gene therapy for a rare skin disorder on Tuesday. The gene therapy, called Zevaskyn ...

The risk of some skin cancers, including squamous cell carcinoma, basal cell carcinoma, ... National Organization for Rare Disorders. Updated March 29, 2026. Accessed April 17, 2025.