Derbyshire Times1h
Council issues apology - as Chesterfield mum left feeling ‘hopeless’ after SEND department refuses to update EHCP with daughter’s diagnosis
Derbyshire County Council has promised to update the Education Health Care Plan for a Chesterfield girl after being contacted ...
Celina Jaitly Shares Photos On Twin Sons Winston And Viraaj’s Birthday, Says ‘Babies Are Growing Up’
Last year, she opened up about her motherhood journey — her unique genetic condition that led to her conceiving twins twice.
STAT3h
At meeting on guardrails for gene editing of human embryos, some call for a dead end
At meeting on human embryo editing, CRISPR pioneer says science is a long way from knowing if germline DNA can be safely ...
Managed Healthcare Executive15h
FDA Approves First Drug for Excess Hunger in Prader-Willi Syndrome
Vykat XR will be available in April to treat the intense hunger that is a hallmark of the rare genetic disease Prader-Willi ...
Rutgers University15h
Four Rutgers Researchers Named Fellows of the American Association for the Advancement of Science
Rutgers faculty elected to the newest class of fellows of the American Association for the Advancement of Science (AAAS) are ...
Strange bird leaves hunter ‘speechless’ as they cross paths in Mississippi wilderness
An odd-looking creature seen only on trail cameras in Mississippi proved to be even more stunning when it finally crossed ...
BioWorld18h
First Prader-Willi treatment Vykat XR FDA-approved: Soleno soars
Becoming the first treatment for rare genetic disorder Prader-Willi syndrome (PWS), breakthrough therapy drug DCCR (diazoxide choline) gained U.S FDA approval as Vykat XR the evening before March 27, ...
Fierce Pharma20h
Soleno breaks through with FDA nod for Prader-Willi syndrome treatment Vykat XR
Since 2000, when the FDA approved recombinant human growth hormone (rhGH) for those with the rare genetic disorder ...
Soleno Therapeutics execs reap stock windfall after FDA approves rare disease drug
Soleno Therapeutics' FDA-approved drug for Prader Willi Syndrome triggers executive stock bonuses as the company's value ...
WJRT ABC1222h
Bay City mom of a boy with Angelman Syndrome on a mission
BAY CITY, Mich. (WJRT) - A mother in Bay City is on a mission to create more inclusivity and awareness for those with special ...
Northern New York mom prepares to advocate for Complex Care Assistant Bill in Albany
The legislation would provide training and compensation for parents and likewise caregivers who provide at home medical care for medically fragile children. While the bill received support from NY ...
News-Medical.Net1d
Scientists uncover rare gene variants that help people live past 100
Researchers studying over 2,000 Ashkenazi Jewish centenarians uncovered two rare IGF-1 gene variants linked to exceptional ...