Extended half-life products for children with hemophilia B reduce both bleeding episodes and the need for infusions, ...
Safety is important, but for people with hemophilia, avoiding any risk can feel like missing out on life, says columnist.
Columnist Jennifer Lynne attended 10 bleeding disorders conferences in 2025, and has some ideas about improving representation for women.
The new EnzySystem device for hemophilia A could make home clotting tests easier, but patients and caregivers say its ...
Lack of sleep increases columnist G Shellye Horowitz's susceptibility to injury, which can be dangerous with hemophilia and ...
Parents of children with hemophilia, especially mothers, often experience deep guilt linked to the genetic nature of the ...
For columnist Allyx Formalejo and her husband, Jared, the new year is about building and committing to systems that help them ...
Columnist Joe MacDonald says his mind often feels like a dangerous neighborhood, but the support of others guides him back to safety.
MacDonald enjoyed the snow during a recent trip to Taos, New Mexico, but it also brought back some tough memories.
Columnist Joe MacDonald knew giving in to fear wouldn't help his son's hemophilia pain, so he developed ways to distract him and stay calm.
Whether with quilting or hemophilia care, sometimes it's necessary to learn lessons the hard way, writes columnist.
Columnist Jennifer Lynne says that, while living with hemophilia, spontaneous soft-tissue bleeds can occur without warning and rattle her.
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