American Council on Science and Health1d
“Rare” but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
Threat to son's treatment for rare disease 'agony'
A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
ISRAEL21c6d
Diagnosing rare diseases could soon get much simpler
Impilo's prototype platform scours medical records to pinpoint symptoms of unusual illnesses that are often overlooked by ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Labiotech.eu12d
Rare Disease Day: seven drugs awaiting approval in 2025
As we observe Rare Disease Day today, let us take a look at seven drugs poised to be approved to address rare diseases in ...
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Talking rare diseases with U of M
Rare Disease Day is observed every year on February 28 to raise awareness for quality health care, equitable social ...
FSU's Rare Disease Day spotlights promising research for families
Rare Disease Day provided a forum for university and state leaders to lay out the future plans and share the work already ...
Cherokee Phoenix19h
Cherokee Nation Rare Disease Task Force outlines recommendations tribe can take to assist those with rare diseases
The Cherokee Nation Health Services Rare Disease Task Force has released a report outlining progress made over the past year ...