I see many patients with neurofibromatosis, a genetic condition that can cause changes in the skin and nerves, and one of the features I often notice is freckling. While these freckles can be a sign of the condition, they are nothing to worry about on their own, they are just like any other freckles. On #LoveYourFrecklesDay, I encourage anyone living with neurofibromatosis to take pride in your freckles, they are part of your story and a unique feature to celebrate! ⁠ Learn more at the link belo
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I see many patients with neurofibromatosis, a genetic cond…
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Neurofibromatosis Type 1 (NF1)
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hopkinsmedicine.org
In neurofibromatosis, many small, fleshy growths of nerve tissue (called neurofibromas) form on or under the skin and in other parts of the body. Learn more: https://mrkmnls.co/43C2YRf | Merck Manual Consumer
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Neurofibromatosis — a rare disease that doesn’t get enough attention. It’s a genetic condition that causes tumors to grow along nerves in the body. Sometimes they stay small and harmless. Other times, they affect vision, movement, or even the bones and skin. For many people, including @oliverbromley, living with neurofibromatosis means navigating uncertainty — and incredible strength. There’s no single cure yet, but there are treatments that can manage symptoms, slow tumor growth, and improve qu
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