Dravet Syndrome
Dravet Syndrome
Sep 7, 2021
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luriechildrens.org
As we observe #DravetSyndromeAwarenessMonth, we are honored to share Jake's story, a courageous individual who has been living with Dravet syndrome since his first seizure at the age of 7 months. Jake, now 26 years old, has demonstrated incredible strength in his ongoing battle against this condition. During our Externally-Led Patient-Focused Drug Development Meeting last year, Jake's mother fearlessly shared their family's journey, shedding light on the challenges they have faced and continue t
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